“My Friend” written in a manic phase…

“My Friend”

February 6, 2010 at 11:44am

Do you know me?

Do you know me?
Do you know the battles I have fought to be here?
Do you know I’ve lately escaped from Hades?
Do you know the Herculean strength I possess?
Do you know I have vanquished the Furies?
Do you know I have withstood the song of the Sirens?
Do you know I have tamed Scylla and Charybdis?
Do you know even Medusa loves me now?
Do you know I have moved from fear into love?
Do you know how much you have helped me?
Do you know how grateful my heart is for your presence in it?
Do you know you are leading me to self love and peace?
I know you too and I love you.

Some things I wrote in a pretty severe manic phase.

bipolar disorder

February 24, 2012 at 2:28am

last time the tiger had me by the throat and was shaking me sinking in its teeth into my jugular, my life ebbing away, ebbing away

now it’s the black bars heavy and ponderous and impregnable that imprison me

there is no window in this cell, no light comes near this dismal dank place full of tears and heaviness

maybe I live in a black hole…

last time I screamed and kicked and struggled for help

this time i am so tired I cannot open my mouth and even if I could I have lost my voice

how does one live their life like this?

does what you are having for dinner matter when the darkness is choking your spirit?

does what time you go to bed have any meaning when the banshees are threatening to wake up the neighborhood?

Normal? How do you live a normal life?

I am surrounded by normalcy and efficiency and “perfection”, much admired by everyone

I too exist, I scream but no one hears because I live in a black hole and nothing escapes this black hole, not light, not sound

yet i did make a birthday cake today and decorated it with macerated, sherried berries

a piece anyone?

does anyone second guess themselves as much as someone with a mental illness?

did i say that because i’m depressed?

was that an over reaction because I am hypomanic?

Who am I? WHY ME???????? Why could I not have been NORMAL and lived my life blissfully ignorant of all of these issues. Yes I have issues.

Anger is definitely one of them BUT is it because of my illness? Anger and irritability are definitley a BIG part of mixed state bipolar disorder. But try explaining that to a friend you’ve just testily told to shut up or a sister who is offended because you said too bad her favorite singer isn’t dead. Just try to explain it to them Try to explain it to yourself even… are you sure it was because of your “mood state” and not just because you were angry? How do you tell? There is no blood test like a blood sugar test for mood disorders. There is no litmus paper that turns red under manic conditions and remains blue during the depressions. And anyway even if there was, would it be purple when you were normal, if you ever were normal…

Fuck tigers and black holes, fuck creativity and intelligence, I’d give my right arm to be stupid and normal and blissful just for one day. It does happen every once in a while and it is indeed a blessed event, something people take for granted day after day. They don’t have to live with extreme amounts of angst, anxiety, sadness, hopelessness, anger, over thinking everything, all the negative emotions. Why no joy? That’s a mood too, why can’t I have an overabundance of joy? Dancing brings me joy but now because of Depakote which makes my joints ache all the time I can’t dance a lot. Horrid medicine. Horrid doctor who prescribed it to me. Physically depakote makes me feel about a 100 years old. Emotionally I am doing better but not 100% better… yeah whatever you just have to live with it.

Bipolar Post 4: Side effects of drugs.

I have been given so many drugs to try, I have lost count. The only three I can take with relatively few side effects are Lithium Carbonate ER (extended release), Seroquel, and Zoloft.
Depakote gave me horrible anxiety, and made half my hair fall out. Tripleptal, same, made half my hair fall out, Wellbutryn made me so anxious, I thought I was literally going to explode. Ability gave me Parkinson’s like symptoms, with shuffling gait, stiff muscles and made me feel about 80 years old. Lamictal put me in a hypomanic phase and finally pushed me into full blown mania and I had to be hospitalized. They found out after initial trials with Lamictal that it is not effective with bipolar 1 (which is what I have), only for the milder bipolar 2 does it work. So a LOT of people who have bipolar 1 went into full blown mania as a result. Oh well, c’est la vie! Saphris gave me blinding migraines. There are more, but I think it is clear how bad the side effects of these meds can be. One of them literally stated that one side effect is sudden death!!! What more can I say!
Side Effect Reference: http://www.cchr.org/quick-facts/psychiatric-drugs-side-effects.html

 

Bipolar Post 3: Anhedonia.

There is something else that I wanted yo talk about that I would bet not many people have experienced. I certainly wish I hadn’t. It’s called Anhedonia. It is a complete absence of positive emotions. And it is one if the most terrifying states any one can ever experience. It is sheer emptiness and fear. It feels like you are are a new born baby who is left all alone in the world after nuclear armageddon. I don’t know how else to describe it. I have experienced it and it is truly terrifying. A few years ago, I was rapid cycling in my mixed phases, minding my own business, when I woke up from a nap and wow all my positive emotions were gone, zapped. I called my psychiatrist’s office in a panic, and he told the secretary to tell me to go to the emergency room if I felt so bad. All he had to do was call me back and talk to me, I didn’t need to go to the ER. I felt so alone and betrayed by this doctor. Oh yeah, I will write a post soon about BAD psychiatrists who mistreat and even abuse their patients, because of course we are mentally ill and who is going to take us seriously if we complain?

Bipolar Post 2: Devastation.

I am not just a pretty face haha! The fact that I am alive shows my steely strength and determination and will in the face of this devastating disease. I have been in depressions so severe that I have contemplated, but thankfully NEVER, attempted suicide. My brother didn’t make it. My sweet, beautiful, innocent, sensitive baby brother, it seems like a dream when we had him with us. Unfortunately he refused to stay on his medication, until he went into a depression so severe that he ended his life. I have never said this so plainly to anyone, but he walked into the rapids of Niagara Falls and he was gone. I have not visited the Falls since June, 1991, which is when he took his life. It was a devastating, annihilating event in all our lives. My mother never recovered from it. How could she, after losing a son she absolutely doted on? We lost him, he was only 26 years old. He left us two beautiful children though, and for that I am thankful. The summer of 1991 was the hardest time of my family’s life. He was only 18 when he started having mood issues. None of us knew what was happening at that time, we didn’t even know what bipolar disorder was. After a while his illness became more severe and my parents took him to a psychiatrist. He was put on lithium and other meds but he refused to take them, saying instead that he would control his own brain. We all tried to convince him that in the face of this illness, no one can control their brain. But he was adamant. After many hospitalizations, during one of which, he even escaped from the hospital, he eventually took his own life. We were devastated, his children were left fatherless. That was when my illness came to the forefront. A textbook case, when one family member gets sick, and because of the stress of the situation, other family members also start exhibiting symptoms of the same illness. However, I have always taken my medication, perhaps because of my background in Biology and my understanding of how neurons and neurotransmitters work. I wish so much that I could have helped my sweet, lovely brother. The toll of this illness is sometimes almost too much to bear.

Beautiful flowers for my beloved brother.

DSCN3216

Bipolar Post 1: Mixed Phase Rapid Cycling Bipolar Disorder.

One thing not commonly known about BPD is that it comes in many varieties. There is the straight mania/depression variety. There is the “Mixed Phase Rapid Cycling” variety. This is the one I suffer from so I can be the most informative about this one. In this mixed phase rapid cycling type, you can go through many cycles of manicky/normal/depressed in one day. When you are manicky, you can be talkative, take risks you wouldn’t normally take, don’t sleep, have lots of energy and lose weight. It can be exhilarating, but it also comes with a LOT of anxiety. I know, sometimes I feel like my heart is going to burst out of my chest or I am going to die. In the normal phase, you are perfectly normal, no one looking at me in the normal phase can say I am cycling. The only bad thing about the normal phase is that you realize all the crazy things you have been doing in your manic phase and it can be quite devastating. In the depressed phase, you have no energy, you cry a lot, the bottom just falls out from under your feet. I just stay in bed. Can’t function. So no one knows what I look or act like when I’m depressed. It’s kind of like like being a yoyo whose strings are controlled by someone else. Imagine you not being able to control your thoughts and emotions. Just going on this involuntary, sometimes devastatingly painful emotional roller coaster ride. Until finally either you realize in one of your normal phases what’s going on and call your psychiatrist to prescribe you some extra lithium or one of your loved ones does. The increased dose of lithium miraculously brings you out of this mixed phase and gives you back normal. And you have never been so glad of that six letter word than the day you aren’t cycling anymore!!! So this is one of the things that happen to people who have bipolar disorder.

Purpose of this Bipolar1Blog.

Japanese Maple Amherst

Dearest Readers,

The purpose of these posts about bipolar d/o is not to get sympathy for myself, or to shock anyone. It is simply to describe what it feels like to have bipolar disorder. The purpose of all this is to inform and hopefully destigmatize mental illness. I’m hoping that if I talk about my experiences, then all of you will see that this can happen to anyone. Hopefully reading about my experiences will also help people identify mental illness, perhaps in themselves or others and get help. Also, as I talk about my mental illness, I am seeing that it frees others to talk about their illnesses. And what a relief it is to be able to talk to each other, instead of hiding and cowering in shame because we have an illness. There should be no shame associated with any illness, we did not choose to have this illness. We actually should be very proud of our selves for being strong enough to survive and live our lives against huge odds. The strength we possess is amazing to be able to deal with the adverse circumstances of having a mental illness. Again I say, we should be PROUD that we are able to function and survive.
Another reason I am doing this is because I am capable of explaining this disease to people who don’t know what living with a mental illness feels like, therefore I am doing it. If one believes that there is a purpose to one’s life, then maybe this is my purpose. To explain, educate, explicate, and clarify mental illness. I know it intimately, and I know science very well as well. It just makes sense!

With love and peace.
Samina.